Many studies have suggested that caring for patients with dementia may be associated with increased burden, particularly when subjects present with prominent behavioural problems. The present work aimed to review studies appearing on MedLine between 1990 and January 1998 that included the following keywords: 'burden or impact or cost' and 'dementia or Alzheimer's disease' and 'carer or caregiver or caregiving or family'. Only fourteen of the studies retrieved fulfilled the entry criteria for this review: crossectional or longitudinal studies looking at the association between behavioural problems in patients with dementia and burden of carers. All studies indicated that behavioural disturbances are an important cause of burden, although there was little consistency on the definition of 'behavioural disturbances'. As a consequence, it is still unclear which behavioural symptoms are more closely associated with increased burden of care. Future research in the area should aim to clarify these issues and develop management strategies to decrease burden on carers of patients with dementia.
dementia; Alzheimer's disease; behavioural disorders; depression; delusions; hallucinations; psychosis; burden; carer
