Analysis of knowledge, attitudes, and practices of physicians and nurses regarding the experiences of family caregivers of older adults with dementia: a KAP study

Maciel, Monique Maira; Reiners, Annelita Almeida Oliveira; Cunha, Carla Rafaela Teixeira; Azevedo, Rosemeiry Capriata de Souza; Cardoso, Joana Darc Chaves; Andrade, Amanda Cristina de Souza

doi:10.1590/1981-22562024027.230124.en

Monique Maira Maciel

conceptualization and analysis and interpretation of data

paper writing

approval of the version to be published

responsible for all aspects of the work

Universidade Federal do Mato Grosso (UFMT), Faculdade de Enfermagem, Programa de Pós- Graduação em Enfermagem. Cuiabá, MT, Brasil.

https://orcid.org/0000-0003-4334-8560

Annelita Almeida Oliveira Reiners

conceptualization and analysis and interpretation of data

paper writing

approval of the version to be published

responsible for all aspects of the work

Universidade Federal do Mato Grosso (UFMT), Faculdade de Enfermagem, Programa de Pós- Graduação em Enfermagem. Cuiabá, MT, Brasil.

https://orcid.org/0000-0002-5699-8215

Carla Rafaela Teixeira Cunha

conceptualization and analysis and interpretation of data

paper writing

approval of the version to be published

responsible for all aspects of the work

Universidade Federal do Mato Grosso (UFMT), Faculdade de Enfermagem, Programa de Pós- Graduação em Enfermagem. Cuiabá, MT, Brasil.

https://orcid.org/0000-0001-7084-221X

Rosemeiry Capriata de Souza Azevedo

conceptualization and analysis and interpretation of data

paper writing

approval of the version to be published

responsible for all aspects of the work

Universidade Federal do Mato Grosso (UFMT), Faculdade de Enfermagem, Programa de Pós- Graduação em Enfermagem. Cuiabá, MT, Brasil.

https://orcid.org/0000-0001-7986-5768

Joana Darc Chaves Cardoso

Critical review the paper

approval of the version to be published

Universidade Federal do Mato Grosso (UFMT), Faculdade de Enfermagem, Programa de Pós- Graduação em Enfermagem. Cuiabá, MT, Brasil.

https://orcid.org/0000-0003-1989-4043

Amanda Cristina de Souza Andrade

analysis and interpretation of data

Universidade Federal do Mato Grosso (UFMT), Instituto de Saúde Coletiva. Cuiabá, MT, Brasil.

https://orcid.org/0000-0002-3366-4423

Correspondence Monique Maira Maciel monique_maira@hotmail.com

The authors declare that there is no conflict in the conception of this work..

Edited by: Priscila de Freitas Bastos Pazos

1. KNOWLEDGE ABOUT INFORMAL CAREGIVERS OF OLDER ADULTS WITH DEMENTIA

Regarding informal caregivers of older adults with dementia, respond to the following statements:

1. Typically, caregivers have sufficient knowledge about what dementia is.

2. Caregivers can experience loneliness and a sense of familial abandonment.

3. Due to caregiving, caregivers may suffer physical consequences such as body pain and insomnia.

4. Commonly, caregivers have insufficient knowledge about dementia treatments.

5. Because of caregiving, caregivers may experience mental and/or emotional consequences such as anxiety, stress, and depression.

6. In general, caregivers are adequately trained to care for individuals with dementia.

7. As a result of caregiving, caregivers may face social consequences such as job loss, decreased income, and social isolation.

8. Generally, caregivers do not have difficulties in self-care.

9. It is common for caregivers to have difficulties in caring for the older individual with dementia (e.g., not knowing how to handle the behavioral changes of the older individual).

2. ATTITUDES TOWARDS INFORMAL CAREGIVERS OF OLDER ADULTS WITH DEMENTIA

Regarding informal caregivers of older adults with dementia:

1. I believe that, in general, they have sufficient knowledge about what dementia is.

2. I think caregivers have insufficient knowledge about dementia treatments.

3. I consider that, due to caregiving, caregivers may suffer physical consequences such as body pain and insomnia.

4. I assume that, because of caregiving, caregivers may experience mental and/or emotional consequences such as anxiety, stress, and depression.

5. I believe that, as a consequence of caregiving, caregivers may face social consequences such as job loss, decreased income, and social isolation.

6. I believe that, in general, caregivers are not adequately trained to care for individuals with dementia.

7. I consider that caregivers often have difficulties in self-care.

8. I suppose that the healthcare professional attending to the older individual with dementia should provide caregivers with information about the disease, care, and support services.

9. I believe it is important to support and guide caregivers regarding dementia and care for the older individual.

10. I think that, in the care of older individuals with dementia, it is necessary for the healthcare professional to allocate time to listen to the caregiver's needs.

11. I believe that healthcare professionals should also be concerned about the caregiver during the care of the older individual with dementia.

12. I believe that healthcare professionals should expect caregivers to reach out because they are responsible for seeking help.

13. I believe it is common for caregivers to have difficulties in caring for the older individual with dementia (e.g., not knowing how to handle the behavioral changes of the older individual).

3. HEALTHCARE PROFESSIONAL PRACTICES REGARDING THE ATTENTION TO CAREGIVERS OF OLDER ADULTS WITH DEMENTIA

In my practice of caring for older individuals with dementia, I carry out certain actions with caregivers:

1. Home visits;

2. Team training;

3. Support groups;

4. Health education;

5. Caregiver consultations;

6. Providing information and/or guidance.

Reasons for not implementing these practices or doing them only occasionally:

1. Time constraints;

2. Communication difficulties;

3. Difficulty in managing family issues associated with dementia;

4. Struggles to meet family expectations;

5. Lack of training in providing care to OILDs and their caregivers;

6. Insufficient knowledge about support services for OILDs and their caregivers.

Variable	n (%)
Knowledge
Satisfactory	40 (100.0)
Unsatisfactory	0 (0.0)
Attitude
Favourable	40 (100,0)
Unfavorable	0 (0,0)
Pratice
Sufficient	3 (7,5)
Insufficient	37 (92,5)

Type of action	Yes	No	Sometimes
Type of action	n (%)	n (%)	n (%)
Information/guidance	12 (30.0)	1 (2.5)	27 (67.5)
Home visits	8 (20.0)	6 (15.0)	26 (65.0)
Team qualification	1 (2.5)	33 (82.5)	6 (15.0)
Support group	0 (0.0)	40 (100.0)	0 (0.0)
Health education	3 (7.5)	29 (72.5)	8 (20.0)
Consultation with the caregiver	4 (10.0)	16 (40.0)	20 (50.0)
Type of information/guidence	Yes	No	Sometimes
Type of information/guidence	n (%)	n (%)	n (%)
About the disease	10 (25.0)	9 (22.5)	21 (52.5)
About diagnosis	3 (7.5)	27 (67.5)	10 (25.0)
About treatment	8 (20.0)	14 (35.0)	18 (45.0)
About support services	10 (25.0)	30 (75.0)	0 (0.0)
About caregiving for OILD	12 (30.0)	5 (12.5)	23 (57.5)
About books, websites, papers on dementia	4 (10.0)	33 (82.5)	3 (7.5)

Variable	Unsatisfactory Practice	Satisfactory Practice
Variable	n (%)	n (%)	Value of p¹
Age (in Years)			0.218
26 - 29	4 (10.8)	0 (0.0)
30 - 34	17 (46.0)	1 (33.3)
35 - 39	6 (16.2)	2 (66.7)
< 40	10 (27.0)	0 (0.0)
Sex			0.455
Female	28 (75.7)	3 (100.0)
Male	9 (24.3)	0 (0.0)
Profession			0.500
Nurse	19 (51.3)	1 (33.3)
Physician	18 (48.7)	2 (66.7)
Years of education (in Years)			0.538
2 - 8	19 (51.3)	2 (66.7)
9 - 17	18 (48.7)	1 (33.3)
Highest degree			0.704
Graduation	12 (32.4)	1 (33.3)
Postgraduate diploma	25 (67.6)	2 (66.7)
Area where they worked the most			0.455
Primary Care	28 (75.7)	3 (100.0)
Others	9 (24.3)	0 (0.0)
Education in geriatrics and gerontology / gerontology			0.925
Yes	1 (2.7)	0 (0.0)
No	36 (97.3)	3 (100.0)
Years working in the unit			0.394
Up to 3	32 (86.5)	2 (66.7)
More than 3	5 (13.5)	1 (33.3)
Received content on dementia			0.723
Yes	33 (89.2)	3 (100.0)
No	4 (10.8)	0 (0.0)
Received content on caregivers			0.786
Yes	3 (8.1)	0 (0.0)
No	34 (91.9)	3 (100.0)
Participated in dementia training			0.149
Yes	8 (21.6)	2 (66.7)
No	29 (78.4)	1 (33.3)

[1] Correspondence Monique Maira Maciel monique_maira@hotmail.com

Brasil

Brasil

Analysis of knowledge, attitudes, and practices of physicians and nurses regarding the experiences of family caregivers of older adults with dementia: a KAP study

Abstract

Objective

Method

Results

Conclusion

Brasil

Brasil

Analysis of knowledge, attitudes, and practices of physicians and nurses regarding the experiences of family caregivers of older adults with dementia: a KAP study

Abstract

﻿Objective

Method

Results

Conclusion

Objective